Oct. 30th Ace Activism Panel Discussion: Beyond Awareness

Come and see what I’ve been up to lately!

While I haven’t been as active as I used to be in the ace scene over the last couple years, I’ve called up several people who are more involved to talk about their experiences with ace activism, including how they got here and advice for the next generation of budding ace activists.

In keeping with the 2021 Ace Week theme of “Beyond Awareness”, we’ll also discuss our thoughts on the future of ace activism, including how we can expand our efforts to move beyond just doing basic 101 awareness talks.

About this event:

Sat, October 30, 2021
11:00 AM – 12:30 PM PDT

Join us for a casual Ace Week panel discussion about the future of ace activism, and how to move “Beyond Awareness”.

Hear from members of the AVEN PT, Ace Community Survey Team, The Asexual Agenda, The Ace/Aro Scholars Support Network, Ace Los Angeles, and more.

In line with this year’s Ace Week theme of “Beyond Awareness”, we’ll be discussing the ways that ace activism can move beyond just focusing on basic 101-level awareness campaigns, including suggestions for promising avenues for future ace activism as well as areas of unmet needs that are often overlooked.

We’ll also discuss each panelist’s own experiences with ace activism over the years, and advice for new generations of aspiring ace activists on how to get started with ace community volunteering.

We will be opening up for audience questions and comments in the latter half of the panel. If you would like to submit any questions in advance, please email sennkestra@gmail.com. (You will also be able to submit questions during the panel).

More event information here: https://www.eventbrite.com/e/ace-activism-panel-discussion-beyond-awareness-tickets-196690495567

We Contain Multitudes: Asexual Community as a Coalition

When I was watching the recent HHA anniversary livestream earlier this month, the presenters highlighted an old quote from one of David Jay’s posts from the very early days of modern ace communities that really resonated with me. The quote occurred in response to an email thread about questions on how to create a universal definition for asexuality, a debate which continues to this day:

It seems like a common definition is sort of problematic. Because, in the end, we only sort of have a common identity. Asexuality means very different things to each of us, and finding a definition which is all-inclusive and still meaningful may be impossible. The reason that we’re forming a group isn’t because we have a neat, common identity but because we face a common set of issues. It seems like if we form a group it should be around those issues, not around some difficult-to-draw identity line.

– David Jay

It reminded me of a similar concept in my own local ace 101 outreach work for a while now: the idea that asexuality is not a single, unified experience, but rather a similar but varying set of experiences that have just enough in common that it makes sense for us to join in a single community – a coalition of multitudes of varied experiences.

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Starting Meetup Groups: Quarantine Edition

Or, “How to Start a Meetup Group when nobody can actually meet up anywhere because of COVID-19”

This is my submission for the May 2020 Carnival of Aces, on the topic of “Quarantine“.

When I started writing this draft back in early March, it was originally intended to be a challenge for Aces and Aros to find, attend, or start a new local meetup group in time to be in position to hold a local event for the next Ace Week or Aro Spec Week…however, as we all know now, COVID-19 has derailed a lot of offline event plans, and that original challenge is no longer advisable.

However, shelter-in-place requirements don’t have to mean that all local organizing grinds to a halt – it just means that that kind of activities we engage in as local organizers need to shift. Redbeardace has already written about how the silver lining of local groups scrambling to move activities online also means chances to open up those groups to other local constituents who might not otherwise be able to join in.

In this post, I want to extend that conversation to area that don’t even have organized groups yet – but that might have some individuals who are interested in starting one. And so, for you brave pioneers out there who think you might want to start a local meetup, here’s some suggestions for things you can do right now, without even leaving your house!

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What’s the deal with this “Ace Day” Thing?

This document is a work in progress, and changes will be made as additional information is discovered. If you have any suggestions, corrections, requests for clarifications, or archived copies of missing links that you would be willing to share, leave a comment or drop me a line at sennkestra@gmail.com

As some of you may (or may not) know, many aces were taken by surprise on May 8th, 2020 by a flurry of “#aceday” and “#acevisibilityday” tweets that eventually went trending, as well as some complaints generated about things like date choices and vague references to 2015 that probably make no sense to anyone who is newer to the ace community. In the wake of the event, there’s also been a lot of confusion and misinformation going around about what ace day is, when it is, who’s involved, and what its history is.

In light of that, wanted to compile some notes and links to relevant bits of history that I remember from the original ace day campaigns and controversy, which date back to 2015 when it was created by theasexualityblog, as well as a bit about what I have found about what lead to #acevisibilityday suddenly showing up as a trending tag this year (after the event nearly disappearing into obscurity in the intervening years, as well as being previously celebrated for several years on a completely different date).

This is not meant to be a complete narrative of that history; but I hope that the sources included here may be helpful for anyone who would be interested in attempting such a history. Unfortunately, because many of the blogs involved have since changed their names or been deleted, many of the original posts are gone. I’ve tried to provide archived versions or reblogged versions wherever possible.

Please also note that this still doesn’t include the vast majority of commentary – for either event –  just because there was so much activity that it would get overwhelming. Instead, I’ve tried to include a sampling of some of the main points I remember seeing as someone active in ace communities around that time. I’ve also deliberately focused on discussions that were occurring within the ace community, rather than reactions from outside the community.

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Diverse Community Spaces Are Not “Comfortable” Spaces – Nor Should They Be

This is my submission for the January 2020 Carnival of Aces, for the theme of “Conscious and Unconscious Difference“.

While we’re talking about difference, I wanted to take a bit of time to talk about what it means to be a part of a diverse community – like the ace or aro communities – that can contain a huge number of different experiences, with people of all different sexualities, genders, racial identities, ages, coming together to discuss the one or two shared aspects of their experiences that they do have in common. However, even within those shared experiences of asexuality or aromanticism, there can still be considerable variation.

For example, among asexuals, some come to the identity because they don’t feel sexual attraction; others don’t like sex itself, others prefer not to pursue sexual relationships (regardless of whatever other internal feelings they have, some just find it hard to figure out any answer to “what gender of people are you attracted to” other than just, “none?”. There’s also huge variation when it comes to whether people feel averse/indifferent/favorable or just confused when it comes to sexual acts, what kinds of relationships people prefer, and more.

The same goes for the aro community, which brings together both asexual and allosexual aros and also those who don’t quite fit into either end of that spectrum. It brings together some people who have never felt romantic attraction in their life, with others who don’t even know what romantic attraction is supposed to mean. Some choose to pursue sexual relationships, some pursue non-romantic, non-sexual platonic relationships, some prefer not to define their relationships in such terms.

Also within both spectrums are people who identify in the “grey areas” around the fuzzy edges of each group – maybe not quite close enough to feel comfortable using the label without amendment, but close enough to still find it’s concepts useful with a few modifiers.

In effect, it can be helpful to think of these groups as “coalitions” – comprised not of a single group of people with a single identifiable shared experience, but as constellations of related experiences that are just similar enough to find it useful to develop new shared concepts, terminology, and support spaces. (For comparison, consider LGBTQ or queer communities – despite covering a hugely diverse range of experiences, from gay cis-men to bisexual transwomen to queer-identified nonbinary people and more, these groups still find it useful at times to all come together at times under one umbrella and one shared identity.)

However, the thing about diverse, coalitional spaces is that they can also be uncomfortable – because meeting a diverse array of people includes meeting people who’s ways of thinking and expressing themselves might be fundamentally different from yours, and who might force you to reconsider some of your previous assumptions, which can be an inherently uncomfortable process. It can definitely be an uncomfortable feeling when you start encountering perspectives from other community members and find yourself struggling to understand or relate to them. However, I want to challenges the idea that this discomfort is always a bad thing to be avoided. Sometimes, a little discomfort is a healthy and necessary part of growing into a new community and an ever-changing world. 

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Hers and Addyi in Action: Potentially Lax Screenings, Missing Warnings, and More

While I decided that testing if I would get Addyi prescribed to me by Hers was maybe not a good idea, it looks like reporters at the New York Times did test out the service! (and a few others like it), and well….they have a lot of concerns about the whole business model (not just it’s embrace of addyi).

You can find the full article here: “Drug Sites Upend Doctor-Patient Relations: ‘It’s Restaurant-Menu Medicine’ “

In particular, there were concerns about Hers’ Addyi in particular, and how important warnings about Addyi and Alcohol were deemphasized:

One drug, Addyi, which can cause fainting if taken with alcohol, arrived without the necessary safety warning protocols created by the drug’s manufacturer.


A week or two after reporters were approved for prescriptions, the medications arrived in discreet packages.

A shipment of the Addyi libido pills, from Postmeds, a pharmacy based in Hayward, Calif., came with a colorful “usage guide.” “It’s time to get busy,” the guide said.

The Hers questionnaire, as well as an online message from the doctor, had explicitly warned about fainting risks that can arise from taking the drugs with alcohol. But the usage guide made no mention of it. That potential danger was included only in the required F.D.A. information insert printed in a tiny typeface.

Pharmacists dispensing Addyi “must counsel all patients on the need to avoid alcohol” with every prescription, according to protocols created by Sprout Pharmaceuticals, the drug’s manufacturer.

Instead, the pills came with a card providing a phone number for a “drug consultation” with Postmeds.

“The idea here is that there must be an added layer of professional counseling,” said Ned Milenkovich, a pharmacist and lawyer with the firm Much Shelist in Chicago.

Cindy Eckert, Sprout’s chief executive, referred questions to Hers and the pharmacies it uses. Hers referred questions to Postmeds. Umar Afridi, Postmeds’ chief executive, said the required medical insert contained the alcohol warning, satisfying the counseling requirements.

In addition, reporters and other interviewed who ordered viagra from Hims reported concerns about the lack of thorough questions and identification from the supposed medical professionals that the service connected them to.  (Hims is owned by the same company and operates in a similar manner to Hers, the company that supplies Addyi via similar methods).

Some states specifically prohibit doctors from relying solely on online questionnaires to prescribe drugs to new patients. Hims, Kick and Roman said their processes were interactive and should not be considered questionnaires.

In Ohio, state regulators said doctors must — at a minimum — communicate with patients in real time, through audio or video, to meet their standards.

But Spence Bailey of Columbus, Ohio, said he had never spoken to a doctor by phone or on video when ordering hair loss medication from Hims, communicating only through the site’s messaging system.

He said he was satisfied, but canceled his monthly subscription because it was too expensive.

Hims said it complied with state medical board rules.

On some sites, it can be unclear who is reviewing consumers’ health data and prescribing the drugs.

A reporter in California who requested generic Viagra through Roman received a message from a doctor, including his name and a link to a page listing his medical school, qualifications and state licenses.

But a different reporter in California, who requested generic Viagra through Hims, received a message without a doctor’s name.

After being asked about the interaction by a Times reporter, the company said it had changed its software to require doctors to include their medical credentials on such messages.


Also, in other news: while it’s still anecdotal at this point and thus should be evaluated with a grain of salt, there are reports of Addyi being prescribed off-label for post-menopausal women, despite the FDA approval contra-indicating that use.

I took a look and there have been two official trials by Valeant in post menopausal women – well, more like one and a half, since the second was stopped halfway after funding was pulled for reasons I am curious about but can’t find (maybe related to Valeant’s financial troubles?). Both seemed to show similarly limited efficacy and health concerns to the original research.  (Note that despite the abstracts touting proof of efficacy, the actual effects were minimal and by some measures not even statistically significant). It’s not clear whether Sprout is still actively pursuing this route after re-taking rights to the drug from Valeant, but it’s something to keep an eye on – as well as other possible off label uses.

On the Horizon: Bremelanotide and AMAG Pharmaceuticals

After delving back into the wonderfully frustrating and misinformation-filled world of HSDD medications, it looks like it’s not just Addyi that has new updates. It’s also probably a good time to start keeping a closer eye on Bremelanotide  / Vyleesi, a new proposed treatment for HSDD from AMAG Pharmaceuticals.

Unlike Addyi, Bremelanotide is designed to be used only as needed, about 90 min prior to sex. It’s currently being developed to be injected subcutaneously, after other methods showed too many side effects, in particular with worries about low blood pressure. Other common side effects were nausea, flushing, and headaches, which are sure to put you in the mood!

I haven’t had a chance to dig into the proposed method of action, but news articles seem to indicate that it’s neurological, and attempts to balance inhibitory vs. excitatory process in the brain.

It looks like it’s been submitted for new drug consideration by the FDA with an original expected approval announcement in March 2019, but is likely being delayed after the FDA requested more data on side effects.

They’ve also already set up their own website about HSDD as well at unblush.com. It even has it’s own quiz!

I’ve only spent like 20 minutes looking at it so far because I really need to pace myself with these, but here’s a few first impressions:

  1. If you indicate no recent drop in desire in the first question of the quiz, it cuts you off and lets you know that if there’s no decrease, it’s probably not HSDD – which is more than the addyi site is willing to do, so there’s that at least?
  2. On the other hand, if you indicate that your desire has decreased “maybe a little”, but in the questions about negative impact you only mark “I’m afraid my partner will cheat on or break up with me”….it tells you that’s “relationship impact”, a sign of HSDD.
  3. Also, this quiz is like a buzfeed quiz, it’s weirdly full of reaction images and gifs
  4. Both this and some of the ancillary materials for Addyi mention the Decreased Sexual Desire Screener (DSDS), so that’s something I probably want to look into more when I can.
  5. Overall, it’s still manipulative / kinda misleading, but doesn’t seem to be quite as pushy as the addyi site overall – but on the other hand they may just be biding their time because they don’t actually have a drug they can legally push yet.


Update: FDA updates labeling requirements on Addyi/Flibanserin, and new [horrible] Addyi Marketing Campaign

This post has two parts – updated labeling requirements from the FDA last month and a new marketing campaign from Sprout Phamraceuticals  (thanks to redbeardace for flagging it!)

I’m going to address the FDA changes first because I’ve had more time to read up on it, but I think the latter is going to be a bigger concern for ace activists moving forward.

Part 1: FDA Recommends Labeling Changes for Addyi

I missed this earlier, but apparently the FDA released updated labeling requirements for Addyi/Flibanserin last month:


I’ve only had a chance to skim it for now, but it looks like they are downgrading the original warning (which stated that women should not drink alcohol at all while using the drug) to a statement that women should avoid alcohol within a few hours of taking the pill, but may not need to avoid it entirely:

Based on the results of postmarketing studies, the FDA has determined that changes must be made to Addyi’s labeling to clarify that there is still a concern about consuming alcohol close in time to taking Addyi but that it does not have to be avoided completely. Specifically, the boxed warning, contraindication, warnings and precautions, and adverse reactions sections of labeling are being updated to reflect that women should discontinue drinking alcohol at least two hours before taking Addyi at bedtime or to skip the Addyi dose that evening. Women should not consume alcohol at least until the morning after taking Addyi at bedtime.

The FDA is ordering a safety labeling change requiring Sprout to make these changes because the agency was not able to reach an agreement with the company, which was continuing to request removal of the boxed warning and contraindication about alcohol completely from the product labeling. The FDA determined, based on a careful review of available data, that removing this important safety information was not acceptable for the protection of public health.

These changes were based on the results of two additional post-market studies of Addyi/Flibanserin, whcih sprout had requested, as well as additional lobbying from Sprout Pharmaceuticals (which sells Addyi) which wanted to remove alcohol warnings entirely. The FDA’s April 11 post stated:

In the FDA-required postmarketing trial in women who took Addyi and drank alcohol at the same time, there were missing or delayed measurements for blood pressure from when the women were first laying down to when they stood up that are critical in determining the risk of hypotension and syncope when taking Addyi and alcohol together. The FDA’s specific concerns with the trial included:

  • While there were no reports of syncope or hypotension needing intervention amongst women in the trial, the safety precautions built into this trial did not allow for an adequate assessment of this risk. For example, women with low blood pressure while lying down or with symptoms that could be related to low blood pressure (such as dizziness) were not permitted to stand up to have blood pressure measurements taken or had to have repeated blood pressure measurements while lying down until they were high enough for the women to safely stand up. As a result, the data collected had missing or delayed blood pressure measurements from these women while standing.
  • Many more women had missing or delayed blood pressure measurements when they took Addyi and alcohol together compared to when they received alcohol alone or Addyi alone.
  • The amount of missing blood pressure measurements peaked around the time when Addyi’s blood levels were highest in those taking Addyi with alcohol.

The pattern of the missing or delayed measurements provides further evidence of an interaction between Addyi and alcohol that can increase the risk of hypotension and syncope. Given these results, the FDA has determined that the boxed warning and contraindication continue to be warranted. Women at home will not have the safety measures that were included in this trial or necessarily have access to immediate assistance if they were to experience severe hypotension or syncope, which can lead to serious outcomes including falls, accidents and bodily harm.

Part 2: New marketing campaign from Sprout Pharmaceuticals

Addyi has launched a new “Right to Desire” campaign website [content warning: I strongly recommend not taking any medical advice or trusting any claims from this new site.].

This CNN Health article discusses the campaign in more depth and has some initial criticism.

It features a quiz that you can take, which I’m especially worried about based on what they did the last time they decided to have a quiz as part of the very misleading “Find My Spark” campaign.

I’m still looking into the new campaign and will probably need to make another post to actually evaluate it, but I’m like 3 questions into the quiz and we’re already off to a pretty bad start – despite the first questions at least allowing me to state that I have no sex drive* and no problem with that, Addyi doesn’t want to let me think of it as anything except a problem:


It also still uses “HSDD” as their label for the low desire that they are trying to treat, despite the fact that as of the DSM 5 (released in ~2013), low desire is categorized as [M]HSDD only in men, and low desire in women is referred to as FSIAD or “Female Sexual Interest/Arousal Disorder”. Addyi is only marketed to and approved for women. (props to David Jay for pointing that out to me).

Also, I’m still mad that they decided to use purple for this. Adding insult to injury much?

*Technically I do personally consider myself to have a sex drive / libido, just not towards other people, but I don’t think that’s what Addyi’s asking about and I also wanted to see how it treats the many aces who really don’t have anything along those lines.

The Ring Theory of Activist Venting

The ring theory of activist venting, which I’ll explain later in this post, draws it’s inspiration from a very insightful article from the LA times that I encountered a few years ago.  The article describes cancer-survivor Susan Silk’s “Ring Theory of Kvetching” which states, roughly, that when it comes to dealing with the stress of personal traumas like cancer, financial crises, or the death of a loved one, support should flow towards the person most affected, and complaining should be directed away from them. Here’s the full explanation of the theory:

Draw a circle. This is the center ring. In it, put the name of the person at the center of the current trauma. For Katie’s aneurysm, that’s Katie. Now draw a larger circle around the first one. In that ring put the name of the person next closest to the trauma. In the case of Katie’s aneurysm, that was Katie’s husband, Pat. Repeat the process as many times as you need to. In each larger ring put the next closest people. Parents and children before more distant relatives. Intimate friends in smaller rings, less intimate friends in larger ones. When you are done you have a Kvetching Order. One of Susan’s patients found it useful to tape it to her refrigerator.

Here are the rules. The person in the center ring can say anything she wants to anyone, anywhere. She can kvetch and complain and whine and moan and curse the heavens and say, “Life is unfair” and “Why me?” That’s the one payoff for being in the center ring.

Everyone else can say those things too, but only to people in larger rings.

When you are talking to a person in a ring smaller than yours, someone closer to the center of the crisis, the goal is to help. Listening is often more helpful than talking. But if you’re going to open your mouth, ask yourself if what you are about to say is likely to provide comfort and support. If it isn’t, don’t say it. Don’t, for example, give advice. People who are suffering from trauma don’t need advice. They need comfort and support. So say, “I’m sorry” or “This must really be hard for you” or “Can I bring you a pot roast?” Don’t say, “You should hear what happened to me” or “Here’s what I would do if I were you.” And don’t say, “This is really bringing me down.”

If you want to scream or cry or complain, if you want to tell someone how shocked you are or how icky you feel, or whine about how it reminds you of all the terrible things that have happened to you lately, that’s fine. It’s a perfectly normal response. Just do it to someone in a bigger ring.

Comfort IN, dump OUT.

In it’s original form, the ring theory of kvetching is largely a framework for dealing with individual traumas, like chronic illness or loss of a loved one. But it’s one that I think can be easily adapted to other circumstances, and which I’ve personally found quite useful when it comes to dealing community-based traumas, especially when it comes to activism that’s focused on serving marginalized or vulnerable communities.

The Ring Theory of Activist Venting

In the case of activism especially, I rely a lot on a similar concept which I think of as “The Ring Theory of Activist Venting”: when stress starts to build up in the course of activism, and I need to vent about my frustrations, my goal is always to vent outwards, in order to keep the blowback from hitting the very people I’m trying to help – especially when in a position of power or leadership that just amplifies the risk of doing harm if blowback isn’t properly contained.  (And to avoid situations like this [content warning for some swearing] where the OP definitely could have used a better support network for venting, and where honestly I probably could have as well.)

The ring theory of activist venting operates similarly to the ring theory of kvetching, but it also has a few additional considerations:

Rule 1. Activist venting is for protecting your constituents

This is a specific strategy that’s mostly meant to apply to activists who feel frustration or the need to vent about things that they can’t change at the moment, or that they logically know that they don’t want to change, and who need ways to do that without getting inthe way of supporting their constituents. As activists – or as people – situations outside our control inevitable cause frustration, which can build and build and build – and sometimes you just need a release valve. That’s what venting is for (or kvetching, or complaining, or seeking empathy or validation, or whatever you may call it). Examples of things to vent about might be frustration over things like newbies who keep asking the same questions over and over again, or community members who criticize activism campaigns in opposite and conflicting ways, or people in vulnerable situations who thus don’t have the energy to always maintain a proper veneer of  ‘politeness’. These are all things that either cannot be helped (like the fact that vulnerable people in need of help don’t always have the energy for social niceties) or that should not be changed (like the fact that newbies like to ask questions).

Targeting your venting outward is meant to help us cope with  situations in which someone may be a cause of frustration, but is not to blame – and therefore should not be targeted by any fallout. The mantra of the ring theory of activist venting is much like the mantra of the original ring theory : “Support in. Venting Out.”

It is not, however intended as a way to avoid dealing with actual materials concerns, like sexual harassment or  racism or harassment of other community members – those often require more direct action. (Although sometimes venting a bit first can help make sure you’re in the right place to respond to more serious issues appropriately and effectively).

Finally, if you ever get to a point where venting is stressing you more instead of calming you down, or if you find that venting to certain people encourages problematic patterns in your own behavior, then it has ceased to serve it’s purpose (of protecting you and your constituents) and it may be time to consider other vectors of releasing stress.

Rule 2: Venting should be kept away from the spaces in question

Venting frustrations is, in my opinion, best done in more private spaces where the venting is not likely to be seen by the communities being cited as the source of the frustration. At best, it will just kindle more drama and give you more things to get stressed about; at worst, it can silence vulnerable groups and prevent them from ever gain asking for support for fear of getting lashed out at again, or for fear of being a ‘bother’.

In its purest form, and for especially sensitive topics, this can mean venting to just a few supportive individuals in a private chat, or to offline friends who never interact with the communities in question. In it’s most minimal form, it means at least venting to personal side blogs instead of official or organizational fronts.

Rule 3: Venting should always travel upwards, or outwards

One of the things that distinguishes activism from personal trauma is that the circles are often separated not just by distance but by power, and that’s especially important to take into account when determining how to vent. Whether it’s formal group leadership, or even just presenting oneself as an authority on some niche subject by answering questions on a blog, doing activism often means taking a position of some power over others – and as Uncle Ben always said, with more power comes more responsibility. In general, the circles of venting should generally extend either up the chain-of-power/responsibility for a group, or to those outside the power structure entirely.

Going up the chain of responsibility means, for example, that if I’m volunteering to answer emails and I’m getting frustrated by repetitive questions that are already answered on our 101 handouts, I might vent that frustration to other mods, who are at the same level of power as me and higher than the cause of the venting – so I don’t let that spill out on to the asker themselves, or even on to other unsuspecting members who are below me in the chain of responsibility. If I have a frustration with other mods themselves, I might vent to a higher level admin. (The other advantage of venting up the chain of responsibility is that, generally speaking, those at a higher level are the most likely to be able to actually do something to ameliorate whatever is causing the frustration in the first place, in instances where doing something is actually feasible.)

Of course, sometimes going up the chain of responsibility isn’t always an option – whether it’s because there is no higher power available, because you are the higher power, or because the group dynamics are such that there is no way to vent without causing even more problems. In that case, the best alternative is to vent outside of the power structure entirely. In my case, that often means venting to my very non-asexual, non-aromantic roommates – who may not know anything about my particular ace or aro community org politics, but who can at least offer emotional support and a sympathetic ear while I get my need to rant out of the way, and who are at little risk of being personally affected by anything I say.



Addyi/Flibanserin mini-update

I haven’t had the time or energy to keep up as much as I’d like with developments with flibanserin/addyi (yay burnout!), but I was curious and decided to do a quick little search today – looks like the horrible “find my spark” promotion is gone now at least!

Unfortunately, it has since been approved in Canada, and without strong prohibitions against drinking alcohol – despite the fact that combining alcohol and flibanserin is known to cause dangerous side effects.

After valeant got sued for giving up on it, Addyi/Flibanserin rights have returned to a reborn Sprout, the company that originally launched the drug before being bought by valeant.

Their new site is only somewhat misleading instead of very misleading, but it’s also really ugly. It also worryingly (and perhaps dangerously) encourages women to bypass their usual physician to speak to a sprout-recommended telemedicine provider. As the Hastings center asks,

“Are the doctors on this telemedicine portal really going to counsel patients adequately and explore other options for addressing low libido (such as identifying whether the symptom is a side effect of a libido-killing medication or recommending sex therapy) or are they only going to prescribe Addyi?

The telemedicine portal is a way for Sprout to sell the drug directly to a patient without involving her possibly reluctant personal physician….“

Also, you’know, consider the fact that low libido itself often isn’t even a problem in need of treatment at all?

I worry that aces and others who may have a low libido or sexual desire for whatever reason might receive poor guidance from any medical professional not already familiar with them and their concerns, especially one who is being promoted (and perhaps directly or indirectly compensated?) by Sprout itself.  (On top of all the concerns that aces have with even regular medical practitioners.

(I’m tempted to submit a fake request or two just to see what they would tell me, but I need to think a bit about the risks/legality involved with that first and also I think there’s a ~$50 charge at some point in the process.)

There’s also this suspicious new marketing campaign, which could use more looking into.